Having a mental illness effectively means that if you wish to tell someone about an experience you've had that maybe important, through a vision or a dream or a Revelation or Epiphany, then it will fall on deaf ears. The mentally ill have nothing intelligent to say about any thing, because their minds are compromised and twisted by delusions and fantasy. Where does this leave that one genuine soul who needs to communicate something incredible? I am one of those people, or at least that's what I believe - not that what I belief means anything to anyone else.
I published this book, Hope and Fury, and in it I describe visions and dreams and revelations, that maybe important or may not. But I have had almost twenty years to think about it's relevance. I try my hardest to explain what I have seen and experienced in terms that others will understand, but I would like you to make up your own mind:
http://www.hopeandfury.com
Sunday, 17 November 2013
Wednesday, 11 September 2013
The Dove Sun...
The Dove Sun Synopsis:
The Sun is coming to the end of its life. The rich and privileged use superior technology to leave the Earth and go in search of new planets; their fate unclear. The poor, the uneducated and the sick are left behind in the dust and certainty of death in the face of an expanding, Super Red Sun.
Nathan and Kiren had been a couple since they were children. In the small, dusty settlement where they grew up, they fight for resources with their large chaotic families. When Nathan’s father is injured in an accident, he bargains with the local Imam to send one of his children to the Great Hall to receive a dignified and religious death, in return for medicine. And without a choice, Nathan and Kiren set off for the Great Hall, knowing nothing of the incredible secrets they hold inside them.
ISBN-13: 978-1492129486
ISBN: 1492129488
Author: B.C.Bamber
Imprint: Vagabond Unlimited. http://www.vagabond-unlimited.co.uk
ISBN: 1492129488
Author: B.C.Bamber
Imprint: Vagabond Unlimited. http://www.vagabond-unlimited.co.uk
RRP: £5.99.
ISBN: 978-09549691-8-9
Smashwords ISBN: 9781301278336Print copy:
https://www.createspace.com/4397921
http://www.amazon.com/The-Dove-Sun-B-Bamber/dp/1492129488/
Get your free ebook copy here with this coupon code: ZE28J https://www.smashwords.com/books/view/350949
Thursday, 1 August 2013
Meds and Effects
Just started a new forum about medication and the risks and benefits of taking prescription drugs. Please come and visit and add your views: http://www.meds-and-effects.info.
Friday, 26 July 2013
Seeking Advocates for My Book.
Hi - I am giving away free copies of my book The Vast and Gruesome Clutch of Our Law, to anyone willing to read it and then Tweet, Facebook etc about what they think of it? It will be sent to you direct from the publishers if you're in the US or direct from me if you're in the UK.
Sunday, 7 July 2013
The Dalit Caste Writer.
Recently I was thrown out of a bookshop. Bookshops aren’t
known for confrontation and prejudice, but the world of publishing is a class
system, like any other class.
I know a few things about prejudice. I suffer from Schizophrenia.
I have been excluded in several different situations in my life. Everything
from friendships, to work, at church and even a dentist. Discrimination is
usually about fear, but more so in mental health. In publishing there are a
great many difficulties and obstacles in the way of anyone who wants a career
in writing. Class can be one of them.
A degree from Oxford or Cambridge or any good English degree
will get you past a few hurdles, least of all how to write. But the largest one
is money. If you can prove you can make money for your agent, your publisher or
television and film company then you’re in the door. And that’s fine. But what
if you have a background like mine?
Welcome to the world of the Dalit Caste Writer. We are the
untouchables of the publishing industry. Do be an untouchable, you need the
following attributes: no English degree, no agent, no publisher and most
importantly you need to be vain and stupid enough to publish your own work. If
you have all four of these things, then you are a Dalit; an untouchable.
The fact is there are thousands, maybe even hundreds of
thousands of people, writing terrible books and sending manuscripts to a
limited number of agents and publishers and there are thousands of self
publishers, pushing their books onto the booksellers; of which there are only
handful. This is why the Dalit Caste Writer exists. We self create our own
exclusion, due to our huge numbers.
In my time, I have written to vast numbers of people asking
to help me with my career. When I became unwell at the age of 20, I knew my
life was all but over. The diagnosis of Schizophrenia doesn’t come along
straight away. First you’re put into a pre-Schizophrenia bracket called
Schizophreniform, when you have had all the symptoms for at least six months
then you get the dreaded and most life changing diagnosis in the medical
literature. Once there you will be feared, dreaded even, wherever you go.
Friends and family alike will freak out badly if you say or do anything weird.
I have been cast out of a dentist’s chair mid exam, asked to leave a church, a
super-market and recently a bookshop, because staff felt threatened.
You may be wondering at this stage why I’ve combined writing
and mental illness in the same story. The manager who threw me out of the
bookshop, was engaged in conversation with me, as if I was a customer, right up
until the point she realised I was a self-published author. And that’s when she
changed from listening and engaging, to calling security. It seemed to me that once
an industry insider like her realises she’s talking to a self-publisher, it
triggers an instant aggressive response. This is because she realised that she
could treat me in any way she wanted. She was not dealing with a human being
any more. The mentally ill are equally as repugnant to many people. We are a
threat. We don’t understand the difference between right and wrong, which makes
us unable to cope with moral dilemmas and questions. Therefore we can’t be
trusted.
The second reason I have bundled the two together, was because
of the role writing was supposed to take in my life, after I became ill. I
wanted to be a writer from a young age. I started two novels when I was around
18 years old and they were terrible. I had no inspiration, no ideas. After I had
a religious psychotic breakdown, I had masses of stuff to write about. Doesn’t
make me a good writer, I just had stuff to write about. By the time I was
twenty-five I decided to try a career in writing. I got work as a journalist, I
published my first book to test out my ideas. All good. Got some excellent
feedback, which was unexpected. Writing was supposed to be my niche, my way out
of my terrible circumstances, having been very unwell, homeless, friendless,
penniless and unable to work with others because of my paranoid delusions and
thought broadcasts and delusions of telepathy etc. At that time I suffered from
every symptom in a long list of symptoms. Writing could be done in solitude. I
barely had to leave my desk and I could (maybe) earn a living. But since then
writing has become a source of extreme disappointment and depression and
feelings of utter hopelessness. The reason? No-one and I mean no-one will read
my work, answer my letters, emails and calls and those I have cornered at the Cheltenham
Literature Festival, just simply refused to help. This feeling of being
besieged by writers like me, is something I can understand. But at the same
time, it doesn’t help me at all. I just wanted one chance, to escape a life
which is killing me. Like some pathetic X-Factor contestant I find myself
having invested far too much emotional energy in hoping that writing will help
me escape the illness, the economic trap I’m stuck in and give me a little
self-respect for a change. Do I blame the culture of wanting to become a
writer, do I blame the rudeness and ignorance of the publishing industry, or do
I blame myself, for wanting a future that just wasn’t and never has been
available to me? Should I give up and lead a solitary and excluded way of life?
According to recent life expectancy figures, I’ve got fifteen years of my life left
(I’m 38). I lost my whole adult life, on this cruel and relentless illness. And
when it kills me (and it will), my family will mourn my passing and then the
other 7 billion people on Earth will experience one more unremarkable day.
What gets to me, and really I shouldn’t let it, is that one
of the most prestigious Literature Festivals in the world sits a hundred yards
away from my house each year. I look at it as if it’s a mirage. I walk past it
with my head down and a pang of anxiety and anger in the pit of my stomach. I
can’t possibly be this close to world’s finest writers, publishers and agents
and yet so far away it may as well be in Timbuktu. It is all of those things.
Close but far away. The white tents and The Times stands and the occasional
glimpse of Mariella Fostrop, or Lord Winston; the Cheltenham Literature
Festival attendants whizzing around moving stock and directing customers to
right tent for the right event. All the bustle, the big television broadcasting
trucks. All of it a mirage. I am an untouchable and I cannot reach out and
touch them, because they are not there. Not for me anyway.
Wednesday, 19 June 2013
Dying to Take Drugs.
I just thought I'd share with you this qoute in todays Indepedent:
Dr David Shiers, co-author of the “Healthy Active Lives” statement, said: “The evidence is now clear – weight gain, cardiovascular risk and metabolic disturbance commonly appear early in the course of emerging psychosis and are potentially modifiable. As clinicians, if we dismiss these disturbances as being of secondary to controlling their psychiatric symptoms, we may be inadvertently condoning a first step on a path towards physical health inequalities for these young people. This vulnerable group needs a far more holistic and preventive approach.”
http://www.independent.co.uk/life-style/health-and-families/health-news/psychiatrists-call-for-action-over-premature-deaths-of-mentally-ill-8664106.html
The second part of the qoute is one of the things I complained about in a recent letter writing campaign, writing to all the players in UK Mental health care, including the regulators. 'If we dismiss these disturbances as being of secondary to controlling their psychiatric symptoms, we may be inadvertenty condoning a first step on a path towards physical health inequalities...' A bit of long winded way to say that the risk to benefit ratio, is too high, when taking psychiatric drugs. They will kill you by the age of about 55-60. If you're lucky enough to live that long. Given the laws of averages, lowering life expectancy by 15 to 20 years, means that many are dying much much earlier than that and are bringing the average downards. And by a lot.
Dr David Shiers, co-author of the “Healthy Active Lives” statement, said: “The evidence is now clear – weight gain, cardiovascular risk and metabolic disturbance commonly appear early in the course of emerging psychosis and are potentially modifiable. As clinicians, if we dismiss these disturbances as being of secondary to controlling their psychiatric symptoms, we may be inadvertently condoning a first step on a path towards physical health inequalities for these young people. This vulnerable group needs a far more holistic and preventive approach.”
http://www.independent.co.uk/life-style/health-and-families/health-news/psychiatrists-call-for-action-over-premature-deaths-of-mentally-ill-8664106.html
The second part of the qoute is one of the things I complained about in a recent letter writing campaign, writing to all the players in UK Mental health care, including the regulators. 'If we dismiss these disturbances as being of secondary to controlling their psychiatric symptoms, we may be inadvertenty condoning a first step on a path towards physical health inequalities...' A bit of long winded way to say that the risk to benefit ratio, is too high, when taking psychiatric drugs. They will kill you by the age of about 55-60. If you're lucky enough to live that long. Given the laws of averages, lowering life expectancy by 15 to 20 years, means that many are dying much much earlier than that and are bringing the average downards. And by a lot.
Wednesday, 12 June 2013
Diabetic Drugs and Mental Health.
Diabetes is a very serious and complex illness. I got
diabetes in 2006, at the age of 31, which young by any standard. I was on
Olanzapine age 21 at the highest dose for several years, before getting fed up
with sleeping for 16 -18 hours a day and pushing my doctor for a change. I reduced
my dose over the course of a year or more, right down as low as I get it, then
switched to a different drug, which caused seizures. I reluctantly went back on
to Olanzapine, but decided to try and come off it. I had 5 or 6 attempts, the
longest one being about 5 weeks. But it was no good. I couldn’t sleep without
them and it left me with early symptoms of a relapse.
I struggle with food addiction. I am fairly certain that
without Olanzapine and mental health problems I would be as big as I am. But I crave
carbs as if I were a heroin addict, suffering severe withdrawal symptoms with
them. I got my eating under control a couple of times, losing 33 pounds in
weight and getting my blood sugar levels down to single figures. But I could
not sustain this and now my doctors are adding more and more different drugs to
get my sugar levels under control. I know that taking any amount of drugs and
any sort of new and exotic drugs, isn’t going to make much difference. It is
not medication that will solve the problem. It is bringing my eating under
control that is the solution. Even if I was on ever diabetes drug going, if I am
still eating the wrong food then it won’t deal with the problem at all and I will
open myself up to severe side effects.
I got diabetes because of Olanzapine. I then take another
drug to deal with that side effect, which then gives me a new illness and new
set of drugs, the most likely being Pancreatitis. Perhaps the drugs that would
be prescribed for Pancreatitis, will cause another illness and so on.
An episode of Dispatches on Channel 4 recently explained
that GLP1 type drugs prescribed by my doctor for diabetes, causes cell growth
in the Pancreas. This leads to enlargement, inflation and sometimes cancer. In a
sample of deceased US diabetes sufferers, who took GLP1 drugs for diabetes, all
of them had an enlarged Pancreas. There were only eight samples.
Needless to say I chucked out my Januvia drugs.
Saturday, 25 May 2013
Vast and Gruesome Is Being Kickstarted!
The Vast and Gruesome Clutch of Our Law, is now being featured on kickstarter! Please come and support us and get this animated film done. I am offering the first stage in the production process - the making of a trailer to help us raise the funds needed for project completion.
http://www.kickstarter.com/projects/655904664/the-vast-and-gruesome-clutch-of-our-law
http://www.kickstarter.com/projects/655904664/the-vast-and-gruesome-clutch-of-our-law
Friday, 29 March 2013
Thursday, 28 March 2013
Mental Health Human Rights Survey.
Hi - I have now published a survey which will form part of a research paper, looking at how patients feel about the law, and how they may feel in the future, should the law change.
The Uplift of Human Rights in Mental Health.
Funding.
Go to survey...
The Uplift of Human Rights in Mental Health.
About the Research.
As part of a response to the UN Convention on the Rights for
People with Disabilities (CRPD), which made it illegal for people to be
detained and forcibly treated for having a mental illness, I am conducting some
research into how patients might feel about having more rights and maybe the
use of magistrates to help patients and their doctors make decisions about
their care. Although the CRPD doesn’t prevent the state from detaining mentally
unwell people and compelling them to take medication, this new international
law, makes it harder for governments to continue the practice of detaining
people and compelling them to take medication. The UK government for example,
has not changed the law in the light of the changes to international laws. This
research is being carried out to find out more about what patients think about
such laws.
Who is Carrying Out
This Research?
My name is Ben Bamber, and I am a patient who has been
involved in helping the local Trust, as Chairman of the User Forum, in
2001-2003 and I work as a writer having been published in the psychiatric
literature several times.
Why Am I Doing This
Research?
Last year I decided, inspired by the changes to
international laws, to look more closely at why patients are denied some of
their basic rights and how patients might feel should they get the same or
similar rights to people accused of a crime. This research will seek to
establish patient’s views on increasing the rights for mentally unwell people.Funding.
The research is being funded by Ben Bamber.
Who Has Approved this
Research?
This research has been produced with the assistance of 2gether NHS Foundation Trust R&D
Department.
What Will Happen to
the Information Collected by the Project?
The information will be collated and will form part of a
report, supporting or otherwise the introduction of more and better rights for
mentally unwell people. The report will be made available to patients, carers,
professionals and MP’s, plus the news media in the form of a press release. No
personal data will be included in the report. All data relating to your
identity will be destroyed.
Also an article will be written and submitted to a
psychiatric journal, which has not yet been chosen, for publication and to be
made available to clinical staff. This will help professionals understand what
it is like to have your rights restricted when detained in hospital.
Other Information.
You are not in any way obliged to take part. If you do not
wish to participate then that’s okay. None of your personal details be recorded
as all questionnaires will be completely anonymous.Go to survey...
Tuesday, 5 March 2013
Nicola Edgington.
This case is horrific in the extreme. Nicola Edgington who killed her mother, got released after a few years and then attempted to kill someone, then after making several calls to the Police to warn them that she was going to kill someone, murdered a stranger, almost decapitating her. She got 37 years in jail, but as the judge signed off on her sentence, he effectively blamed her and told her that she must take responsibility for her actions. The laws are there to bring dangerous people like her into hospital, and the law is there to ensure that people with a diminished capacity to prevent themselves doing terrible things, should not then be blamed when things go wrong. While a sane Edgington could feel regret, remorse and see her actions as we see them, she clearly could not.
If the law was adequate in this case, if mentally unwell people were given a habeas corpus protection, then this woman would have been arrested for threats to kill, (even though her threats were non-specific), she would have been arraigned, her case would have been argued and examined in court and she would have come into custody for further treatment. But because the law is vague and depends largely on doctors to make assessments, whilst knowing there are pressures on beds and resources, the automatic system that would have kicked in at the point at which she was seen by Police, she was left to kill and maim people instead.
Also, the Police did not take her seriously. They had her in their care and for some reason did not listen to her claim that she felt that she wanted to kill someone. This is just a mystery to me.
Lastly, this is the second case in recent months where the media have been allowed to openly discuss decapitation of victims of mentally unwell people. If one mentally ill person, decapitates someone - a stranger, and that story is openly discussed in the national media, it is the equivalent of a hundred killings by mad people, in terms of the impact on the lives of mentally unwell people who would never kill anyone, no matter how ill they are. Now there have been two horrific murders, the media have reinforced very powerful stereotypes and has made life even harder for mentally ill people, trying desperately to reintegrate into the community. Shame on the government for allowing these details into the media and shame on the media for repeating them.
If the law was adequate in this case, if mentally unwell people were given a habeas corpus protection, then this woman would have been arrested for threats to kill, (even though her threats were non-specific), she would have been arraigned, her case would have been argued and examined in court and she would have come into custody for further treatment. But because the law is vague and depends largely on doctors to make assessments, whilst knowing there are pressures on beds and resources, the automatic system that would have kicked in at the point at which she was seen by Police, she was left to kill and maim people instead.
Also, the Police did not take her seriously. They had her in their care and for some reason did not listen to her claim that she felt that she wanted to kill someone. This is just a mystery to me.
Lastly, this is the second case in recent months where the media have been allowed to openly discuss decapitation of victims of mentally unwell people. If one mentally ill person, decapitates someone - a stranger, and that story is openly discussed in the national media, it is the equivalent of a hundred killings by mad people, in terms of the impact on the lives of mentally unwell people who would never kill anyone, no matter how ill they are. Now there have been two horrific murders, the media have reinforced very powerful stereotypes and has made life even harder for mentally ill people, trying desperately to reintegrate into the community. Shame on the government for allowing these details into the media and shame on the media for repeating them.
Thursday, 10 January 2013
Kalkion Publishes Short
Kalkion the online short story publisher has just published my story The Rioters Candle. Please go read it...It follows a young man arrested during the Arab Spring uprising. He is put into jail beneath the Presiential Palace, where he is visited by a mysterious stranger.
Saturday, 5 January 2013
Vagabond Unlimited Relaunches
I have just launches a new version of http://www.vagabond-unlimited.co.uk, which uses HTML5 instead of flash to keep up with changing web use on phones and tablets. Flash has for a long time been unavailable for use on many hand held devices. I've added some new content including some new Ted on Street cards and some articles, including one on post apocalyptic literature. Please check it out before you go.
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